New Journal Article: A Keynote Address – A Guide to Supporting Conference Speakers with Lived Experience of Cleft Lip and/or Palate

Following on from our panel discussion at Edinburgh 2022, Danielle McWilliams, Dr Amanda Bates, and myself have been working away behind the scenes, putting together an article for the Cleft Palate Craniofacial Journal about making the most of lived experience representation at conferences and ensuring that people with lived experience are well supported throughout. We... Continue Reading →

Participate in Research: Using Patient Reported Outcome Measures (PROMs) to develop a snapshot of cleft outcomes in New Zealand

As part of our Cleft Research Centre at the University of Canterbury, we are using the CLEFT-Q patient reported outcome measuresย to develop a snapshot of how people affected by cleft in New Zealand feel about their speech, and overall wellbeing. We are using this information to understand what usually goes well for people with cleft... Continue Reading →

Create a website or blog at WordPress.com

Up ↑