Mon 31 Oct – Sun 6 Nov is Cleft Awareness Week in New Zealand. Each day during Cleft Awareness Week, I will share a post, interview or presentation about cleft lip and palate with you to help share some of the lesser known aspects of living with cleft!
The experiences of living with cleft panel was an opportunity for our panel featuring people with lived experience of cleft to share their observations and knowledge of what it is like to grow up with cleft. The panel discussed candidly some of their personal challenges, and discussed how despite having received good cleft care, cleft still impacts upon them in different ways, well into adulthood.
I thoroughly enjoy and welcome the opportunity to collaborate on projects with researchers, healthcare providers and NGOs around the world, and I regularly do! If you are interested in utilising my expertise for your research, project, or piece of work, please read this first.
After more than two years of attending conferences virtually at strange hours of the night, it was very exciting to reconnect with colleagues from around the world in person at the 14th International Cleft Congress held in Edinburgh, Scotland.
In 2020-2021 I undertook a study investigating the long-term effect that speech differences have in individuals with cleft lip and palate. Below is a brief summary of the findings, and a link to read my Master of Science (MSc) thesis in full.
Cleft-Palate Craniofacial Journal Invited Editorial. This article was first published in The Cleft-Palate Craniofacial Journal on 13 September 2021.
Face masks have become ubiquitous around the world and have made most people feel a bit uncomfortable or unusual. For me, they’ve given me a comfort I’ve never known before.
It was a pleasure to have the opportunity to present at this year’s Appearance Matters Conference organised by the Centre for Appearance Research. As per my commitment to make as many of my presentations freely accessible as possible, please find the presentation below!
After an incredible 3 and a half years as the Adult Services Manager, my time at CLAPA will come to an end on Monday 28th June 2021. It has been an incredible privilege to work with and for all of you and I have done my best to do my bit to help shine the light on the importance of continued care and support for adults.
In late 2020, as part of CLAPA’s Adult Services Project, we published our paper on Treatment Experiences in the Cleft Palate Craniofacial Journal (CPCJ).
In this podcast, Pat Chibbaro interviews Kenny Ardouin and Nicola Stock about their article, “Physical Health in Adults Born With Cleft Lip and/or Palate: A Whole of Life Survey in the United Kingdom.”
This month, Bruna and Jade discuss the expansion of support for adults with a cleft lip and/or palate. Guests Nicola Stock (Senior Research Fellow at the Centre for Appearance Research) and Kenny Ardouin (Adult Services Manager at the Cleft Lip and Palate Association (CLAPA)), share their important recent research and work in this area.