It was a pleasure to feature on Episode 99 of Appearance Matters: The Podcast! to share our experiences and our findings from the 2024 Aotearoa Cleft Camp, a partnership between Cleft NZ and University of Canterbury. In the podcast, we talk about how we ran the camp, what data we collected to know that the... Continue Reading →
Smile Train Cleft Con 2024 Keynote Presentation and Documentary
On the weekend of 2-3 November 2024, Smile Train hosted their annual virtual Cleft Con event for individuals and families affected by cleft from around the world. It was a privilege to be invited to be this year's keynote speaker. I shared some insights from my own personal journey, and also wanted to send the message to the cleft community that you're not alone.
European Fellowship June-July 2024: Six weeks of global knowledge sharing, learning, and collaborating
I have recently returned to Aotearoa after six informative, insightful weeks throughout the UK and Europe sharing knowledge and findings from our UC Cleft Research Centre with esteemed colleagues and counterparts from across the world. The Fellowship opportunity provided for many excellent experiences to collaborate with different groups, all of whom have a shared interest in making the world a better place for people born with cleft/craniofacial conditions or other visible difference conditions.
“The Power of Lived Experience: Facing Cleft and Craniofacial Care Forward” ACPA Annual Meeting – 12 April 2024
Earlier this month, I had the privilege of attending my first ACPA (American Cleft Palate Craniofacial Association) conference (annual meeting), held in Denver, Colorado. It was a privilege to be invited to speak on a lived experience panel, following on from the paper "A Keynote Address" published in late 2023. The panel consisted of colleagues from the US, Canada, UK, Europe (and me from NZ), all of whom are doing important work with the cleft/visible difference community, while also living with cleft/visible difference themselves. Thanks to the ACPA, the recording of the panel is now freely available online for all to watch and share.
Understanding long-term impacts of cleft-related speech differences in New Zealand adults
Poster Presentation - Australasian Cleft Lip and Palate Association Conference - Melbourne, Australia - Friday 27 - Sunday 29 October 2023 MSc Study - A0 PosterDownload For more info on the study, please click here. Poster Text Authors: Kenny Ardouin1, Nicola Stock2, Tika Ormond1, Phoebe Macrae1 1Te Kura Mahi ā-Hirikapo, Te Whare Wānanga o Waitaha,... Continue Reading →
Summary of Lived Experience Panel: Cleft 2022, Edinburgh
The experiences of living with cleft panel was an opportunity for our panel featuring people with lived experience of cleft to share their observations and knowledge of what it is like to grow up with cleft. The panel discussed candidly some of their personal challenges, and discussed how despite having received good cleft care, cleft... Continue Reading →
What do you want from me? Considerations for Inviting Collaborations and Project Work
I thoroughly enjoy and welcome the opportunity to collaborate on projects with researchers, healthcare providers and NGOs around the world, and I regularly do! If you are interested in utilising my expertise for your research, project, or piece of work, please read this first. This is not a post which gives me any pleasure to... Continue Reading →
International Cleft Congress – 11-15 July 2022, Edinburgh, UK
After more than two years of attending conferences virtually at strange hours of the night, it was very exciting to reconnect with colleagues from around the world in person at the 14th International Cleft Congress held in Edinburgh, Scotland.
Appearance Matters 9 Conference
It was a pleasure to have the opportunity to present at this year's Appearance Matters Conference organised by the Centre for Appearance Research. As per my commitment to make as many of my presentations freely accessible as possible, please find the presentation below! https://www.youtube.com/watch?v=DEUWpSzvmLw Abstract The CLAPA Adult Services Project: Using Evidence-Based Practice to Design... Continue Reading →
Q&A About CLAPA Treatment Experiences Paper
In late 2020, as part of CLAPA's Adult Services Project, we published our paper on Treatment Experiences in the Cleft Palate Craniofacial Journal (CPCJ).
Q&A About CLAPA Interpersonal Relationship Experiences Paper
In February 2021, as part of CLAPA's Adult Services Project, we published our paper on Interpersonal Relationship Experiences in the Cleft Palate Craniofacial Journal (CPCJ).
Q&A About CLAPA Physical Health Paper
In July 2020, as part of CLAPA's Adult Services Project, we published our paper on Physical Health in the Cleft Palate Craniofacial Journal (CPCJ).
