What is it all about?
I am inviting people who were born with a cleft, and are now an adult, to participate in a 60-minute audio-recorded interview (either face to face or via Zoom) to share information about your education, work and social experiences. You will also be asked if you consider your speech to differ to the speech of other people who speak your language and live in your community. You will be asked how you feel your experiences have affected your emotional wellbeing. At the end of the interview, you will also be asked to complete a form with four multiple choice questions – these questions are asked of all participants, and your answers are able to be compared to similar research that has been completed in other countries. This lets us see if what we find in New Zealand is similar or different to what has been found in other countries. It should take no longer than 5 minutes to complete these four questions.
This project has been reviewed and approved by the University of Canterbury Human Ethics Committee.
To find out more about the study, including how to participate, please read the Participant Information Sheet:
Who is eligible to participate in the study?
You can participate in the study if you meet the following criteria:
• Aged 18 or over and born with a cleft lip and palate; OR; aged 18 or over and born with a cleft palate; and;
• Currently living in New Zealand; or; is currently living overseas, but have spent at least half of your life in New Zealand and intend to return to New Zealand to live at some time in the future; and;
• Have accessed cleft related treatment in New Zealand; and;
• Able to participate in an interview using the English language.
Sorry, but you cannot participate in the study if you are/were:
• Aged 17 or under; and/or;
• Born with an isolated cleft lip (CLO); and/or;
• Do not live in, or otherwise have connections to, New Zealand; and/or;
• If you have had all your cleft-related treatment overseas.
Before participating in the study, you will need to complete and return the consent form below.